NIDDK Central Repository
In 2003, the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) at NIH established Data, Biosample, and Genetic Repositories to increase the impact of current and previously funded NIDDK studies by making their data and biospecimens available to the broader scientific community. These Repositories enable scientists not involved in the original study to test new hypotheses without any new data or biospecimen collection, and they provide the opportunity to pool data across several studies to increase the power of statistical analyses. In addition, most NIDDK-funded studies are collecting genetic biospecimens and carrying out high-throughput genotyping making it possible for other scientists to use Repository resources to match genotypes to phenotypes and to perform informative genetic analyses.
Repository Scope
Research Areas
Life Sciences; Biology; Basic Research in Biology and Medicine; Medicine;
Data Types
Tabular; Biomedical; Code; 3D Models; Image; Audio; Experimental; Genomic/Molecular; Geospatial; Machine learning; Observational; Survey; Synthetic/Simulation; Text; Video;
Data Types Encouraged/Permitted
NIDDK-funded or other clinical studies with significant programmatic involvement relevant to the NIDDK research areas and of considerable scientific value to the broader community may be eligible to submit study-generated resources to NIDDK Central Repository (NIDDK-CR). Accepted data types may include, but are not limited to, raw data, analytic datasets, metadata, digital images, computational data sets, and accompanying documentation and codebooks, as well as a representative archival set of biospecimens.
Data Types Explicitly Prohibited
None
Fee for JHU Researchers to Deposit Free
Data Limit
None
Data Access
Option for Data Access
Controlled Access;
Open Access;
Details on Data Access
As detailed in the <a href=https://repository.niddk.nih.gov/public/NIDDK-CR_Data_Preservation_Access_Practices.pdf>NIDDK-CR Data Access Policy</a>, investigators requesting access to resources from NIDDK-CR must (1) submit a project plan and research use statement, (2) sign the <a href=https://repository.niddk.nih.gov/static/NIDDKCR_%20Data%20and%20Resources%20Use%20Agreement.pdf>NIDDK-CR Data and Resources Use Agreement</a>, and (3) receive and submit approval from their institution’s IRB.
NIDDK has final decision authority for granting access to data and/or specimens under the guardianship of NIDDK-CR. For active studies, contributing study leadership in collaboration with NIDDK will make a determination for granting access.
Sensitive Data
Human Data Accepted
Yes
Level of Deidentification Required
Submitted data must be free of direct personal identifiers per the NIH HIPAA “Limited Data Set” Privacy Rule.
Administration
Required Funder
None
Persistent Identifier
DOI
Data Retention Period
5 years
AI LLM Policy
None listed
re3data
re3data Keywords:
diabetes, digestive and kidney diseases
re3data Repository Contact
NIDDK-CRsupport@niddk.nih.gov