AD Knowledge Portal
The AD Knowledge Portal is a public data repository that stores and shares data, analyses, and tools generated by multiple collaborative research programs focused on aging, dementia, and Alzheimer’s disease (AD), funded by the National Institute on Aging (NIA). These programs embrace open science principles and require data to be released in a rapid manner, according to the NIH Genomic Data Sharing Policy. All data, methods, and results generated are distributed under F.A.I.R. (Findable, Accessible, Interoperable, and Reusable) principles.
In total, the AD Knowledge Portal currently hosts data and resources generated across 100+ grant projects in 10+ programs or centers supported by the NIA and includes “omics” data from human samples and experimental model systems, as well as bioinformatic analyses from research teams and cross-consortium working groups.
Repository Scope
Research Areas
Life Sciences; Basic Biological and Medical Research; Biochemistry; Developmental Biology; Bioinformatics and Theoretical Biology; Microbiology;
Data Types
Experimental; Observational; Code; Survey; Text; Tabular; Synthetic/Simulation; Geospatial; Audio; Video; Image; Genomic/Molecular; Biomedical; 3D Models; Machine learning;
Data Types Encouraged/Permitted
AD Knowledge Portal accepts any data format relevant to Alzheimer’s disease research.
Fee for JHU Researchers to Deposit Free for up to 100 GB. They will provide a quote for larger deposits.
Data Limit
No limit, but deposits over 100GB may incur a fee.
Data Access
Option for Data Access
Controlled Access;
Open Access;
Details on Data Access
Open access or controlled access. Controlled access is managed via the AD Knowledge Portal Data Use Certificate, with the option to choose from a defined set of limits on the use of the data. Individual level human participant data may not leave the AD Knowledge Portal Environment (enclave sharing).
Sensitive Data
Human Data Accepted
Yes
Level of Deidentification Required
AD Knolwedge Portal requires submitters to follow the HIPAA Safe Harbor protocol for data shared via both open and controlled-access.
Administration
Required Funder
National Institute of Aging (NIA): AD Knowledge Portal accepts data from these NIA-supported programs: https://adknowledgeportal.synapse.org/Explore/Programs. If you are not funded by one of these and want to submit data, you need to submit an application to be a Community Contributor: https://adknowledgeportal.synapse.org/Contribute
Persistent Identifier
DOI
Data Retention Period
No stated retention period
AI LLM Policy
AD Knowledge Portal's Data Use Certificate states that use of AI tools must be described in requests for data access.
re3data
re3data Keywords:
AMP-AD Knowledge Portal; DREAM Challenges; GitHub; NF Data Portal; TCGA Pan-Cancer Working Group; biomedicine; query structured data; record provenance; research communities
re3data Repository Contact
https://sagebionetworks.jira.com/servicedesk/customer/portal/9/group/26/create/162