National Sleep Research Resource (NSRR)
The National Sleep Research Resource (NSRR) is an NHLBI-supported repository for sharing large amounts of sleep data (polysomnography, actigraphy and questionnaire-based) from multiple cohorts, clinical trials, and other data sources. Launched in April 2014, the mission of the NSRR is to advance sleep and circadian science by supporting secondary data analysis, algorithmic development, and signal processing through the sharing of high-quality data sets.
As part of NHLBI’s efforts to harness data science to drive precision medicine, NSRR is collaborating with NHLBI BioData Catalyst® (BDC) to integrate NSRR data and resources into the BDC ecosystem. BDC is a cloud-based ecosystem where researchers can access NHLBI heart, lung, blood, and sleep data and leverage innovative data analysis tools, applications, and workflows to accelerate their research efforts.
Repository Scope
Research Areas
Humanities and Social Sciences; Social and Behavioural Sciences; Life Sciences; Biology; Medicine; ;
Data Types
Biomedical; Observational; Experimental; Tabular; ;
Fee for JHU Researchers to Deposit None listed
Data Limit
None stated
Data Access
Option for Data Access
Controlled Access;
Details on Data Access
Access to the resources is controlled by per-dataset-access control, and access is only granted to individuals who have completed the web-based Data Access and Use Agreement (DAUA). Each DAUA submission is reviewed by the NSRR Review Committee, and reviewers ascertain that use of data appears appropriate with the intention of data collected and that there is a commitment to keep the data stored securely by the end-user. NSRR DAUAs expire 3 years from the date access is granted and can be renewed by either submitting a new request for data access or by requesting an extension of the agreement in writing to the NSRR Review Committee. For more details see: https://sleepdata.org/about/data-security
Sensitive Data
Human Data Accepted
Yes
Level of Deidentification Required
All shared study data must be de-identified using the HIPAA Safe Harbor method and must adhere to the data sharing language stated in the participant informed consent. Records and files from participants who did not consent to data sharing must be redacted before submitting to the NSRR.
Administration
Required Funder
None listed
Persistent Identifier
DOI
Data Retention Period
No stated retention period
re3data
re3data Keywords:
Childhood Adenotonsillectomy Trial; Cleveland Children's Sleep and Health Study; Cleveland Family Study; Heart Biomarker Evaluation in Apnea Treatment; Hispanic Community Health Study / Study of Latinos; Home Positive Airway Pressure; Honolulu-Asia Aging Study of Sleep Apnea; MrOS Sleep Study; Multi-Ethnic Study of Atherosclerosis; NHLBI; Sleep Heart Health Study; Study of Osteoporotic Fracture; biomedicine; circadian disorder; overnight plethysmography; overnight polysomnograms; physionet; sleep; sleep disorder; sleep medicine
re3data Repository Contact
support@sleepdata.org