Parkinson’s Disease Biomarker Program (PDBP)
The Parkinson’s Disease Biomarkers Program (PDBP) is made up of researchers, patients, family members, and healthcare professionals who are dedicated to accelerating the pace of biomarkers research. The DMR is a collection of modular components that provide researchers with access to tools that allow for the collection and quality assurance of data in a standardized format. The DMR coordinates the assembly of de-identified data into a common database, enabling the query and distribution of aggregate data.
Repository Scope
Research Areas
Life Sciences; Medicine; Epidemiology and Medical Biometry/Statistics; Neurosciences; Clinical Neurology; Neurosurgery and Neuroradiology;
Data Types
Experimental; Observational; Survey; Text; Tabular; Image; Genomic/Molecular; Biomedical;
Data Types Encouraged/Permitted
clinical, biospecimen, neuroimaging, genomic data
Fee for JHU Researchers to Deposit No
Data Limit
Not listed
Data Access
Option for Data Access
Controlled Access;
Details on Data Access
Users need to register an account and determine what kind of data access they need.
Sensitive Data
Human Data Accepted
Yes
Level of Deidentification Required
Required consent from participants. Data should be de-identified.
Human Participant Data Sharing Policy
Administration
Required Funder
None
Persistent Identifier
GUID
Data Retention Period
No stated retention period
re3data
re3data Keywords:
biomarkers, Parkinson's Disease
re3data Repository Contact
https://pdbp.ninds.nih.gov/contact-us