TB Portals
NIAID’s TB Portals Program is a multi-national collaboration for TB data sharing and analysis to advance TB research. As a global consortium of clinicians, scientists, and IT professionals from 40 sites in 16 countries throughout eastern Europe, Asia, and sub-Saharan Africa, the TB Portals Program is a web-based repository of multi-domain TB data and tools for its analysis. Researchers can find linked socioeconomic/geographic, clinical, laboratory, radiological, and genomic data from over 7,500 international published TB patient cases with an emphasis on drug-resistant tuberculosis.
Repository Scope
Research Areas
Life Sciences; Biology; Medicine; Microbiology, Virology and Immunology; Medicine; Natural Sciences; Public Health; Epidemiology; Geography; Human Geography;
Data Types
Biomedical; Genomic/Molecular; Image; Experimental; Observational;
Data Types Encouraged/Permitted
International TB patient case data, including clinical, imaging, and bacterial genomic information, from both drug-sensitive and resistant cases (https://tbportals.niaid.nih.gov/what-types-of-data-do-we-have). Also, data from Nontuberculous Mycobacteria (NTM) patient cases.
Fee for JHU Researchers to Deposit Free
Data Limit
None
Data Access
Option for Data Access
Controlled Access;
Details on Data Access
To obtain clinical data, requestors must complete a Data Access Request. If approved by the reviewer, the requestor and their institution official will be required to sign a Data Use Agreement prior to receiving the data.
To obtain pathogen genomic and imaging data, complete the TB Portal Data Request Form. If approved by the reviewer, requestors will sign a DUA.
Sensitive Data
Human Data Accepted
Yes
Level of Deidentification Required
Depositor should de-identified to HIPAA Safe Harbor criteria at minimum. TB Portals may provide de-identification for certain projects if reviewed and approved by JHU research compliance offices
Human Participant Data Sharing Policy
Administration
Persistent Identifier
TB Portals does not have a DOI as it is a dynamic database. Instead data users should cite their use of TB Portals: https://tbportals.niaid.nih.gov/pdf/TB-Portals-Acknowledgement-and-Citation-Guidelines.pdf
Data Retention Period
No stated retention period
re3data
re3data Keywords:
clinical data; genomic data; imaging data; tuberculosis
re3data Repository Contact
TBPortalsInfo@niaid.nih.gov